About the map:

This map was created by the team at Spectrum, the leading source of news and expert opinion on autism research. (Subscribe to our newsletters.)

The map features a collection of studies on autism prevalence around the world. It highlights places where information is available — and places where information is missing.

Each dot on the map represents a study. To identify these studies, we relied on our expert advisers. The darker dots represent studies that are recommended by the advisors for one or more reasons — although these studies may still be flawed in other aspects.

We plan to update the map with new studies as they become available.

How to use the map:

To see more information about a particular study, click on the corresponding dot. The window that pops up has key pieces of available information from that study.

You can also view and filter the studies in the ‘list’ view. In either the map or the list view, you can use the filters in the top-right corner to display studies that match certain criteria, such as sample size, prevalence estimate and study type. And you can use the timeline at the bottom of the page to filter by the years in which studies were conducted or published.

Key to terms used on the map:

Prevalence is shown on the map as the estimated number of autistic people per 10,000 individuals in the population studied.

Confidence interval refers to the uncertainty of a prevalence estimate. It is the range in which the true prevalence lies 95 percent of the time.

When available, the study shows the proportion of participants with at least an average intelligence quotient (IQ) — the definition of ‘average’ IQ varies from study to study but typically refers to a score above 70 or 80.

Diagnostic criteria include the following options:
ABC — Autism Behavior Checklist
ADOS — Autism Diagnostic Observation Schedule
ADI, ADI-R — Autism Diagnostic Interview, Autism Diagnostic Interview-Revised
Autistic Disorder
CABS — Clancy Autism Behavior Scale
CARS — Childhood Autism Rating Scale
CCMD-2, CCMD-2-R — Chinese Classification of Mental Disorders, 2nd edition
Clinician diagnosis
DAWBA — Development and Well-Being Assessment
DISCO — Diagnostic Interview for Social and Communication Disorderss
DSM-III, DSM-III-R, DSM-IV, DSM-IV-TR, DSM-5 — editions of the Diagnostic and Statistical Manual of Mental Disorders
Gillberg criteria — Christopher Gillberg’s diagnostic description
ICD-8, ICD-9, ICD-9-CM, ICD-10 — editions of the International Classification of Diseases
INDT-ASD — INCLEN Diagnostic Tool for Autism Spectrum Disorder
Parent report
Kanner criteria — Leo Kanner’s diagnostic description
SCDC — Social and Communication Disorders Checklist
SCQ — Social Communication Questionnaire
SRS — Social Responsiveness Scale
Rating scale
RDC — Research Diagnostic Criteria
Rutter criteria —  Michael Rutter’s diagnostic description

Study type includes the following options:
Epidemiological survey — active case-finding with two-stage screen and case confirmation
Registry — analysis of already-identified cases in research databases
Administrative database — classifications based on existing documented provision of services
General health survey — reported symptoms or diagnoses in a population-based survey sample
Research cohort — individuals identified for research projects and followed over time

Category includes the following options:
AD — autistic disorder
PDD — pervasive developmental disorder
ASD — autism spectrum disorder

How to cite the map:

Please include a statement in your article or on your website that indicates that you retrieved the information from autismprevalence.thetransmitter.org. And if you refer to it by name, please call it the “global map of autism prevalence by Spectrum.”

More information:

Here is a selection of Spectrum articles on autism prevalence.

Study quantifies prevalence of autism in India
New report shows slight uptick in autism prevalence
Prevalence of autism in U.S. remains steady, new data suggest
School survey in India reveals low autism prevalence
U.S. stats show autism rate reaching possible plateau
New spike in autism numbers may reflect rise in awareness
Prevalence perturbed
Clinical research: Israeli study shows high autism prevalence
Rising rates
Study finds high rate of autism in South Korea

The team:

Spectrum Team

Project Advisers

Cite this resource: https://doi.org/10.53053/NDWR8664